CLL Prognosis

Actor portrayal

 

Understanding Your CLL Prognosis

If you or a loved one is living with CLL, you may be curious about the typical outcome or course the disease will take. This is called the prognosis.

About 70% of people with CLL live at least 10 years after their diagnosis.1

During this time, they will make many important decisions with their doctors and loved ones. Learning all about CLL and creating a strong CLL care team from the start are helpful steps in

.2,3

Navigating the Phases of the CLL Journey

How your CLL is progressing is a major factor in deciding what steps you and your doctor take and when to take them.

Most people with CLL are at one of 4 major phases of their journey3

Select the image below that most closely matches the phase you or your loved one is in right now.

Facing a New
Diagnosis

An icon of a folder with a "+" sign in the middle
An icon of a folder with a "+" sign in the middle

Facing a New Diagnosis3,4

After receiving a CLL diagnosis, you may feel like life has been interrupted. All sorts of concerns can rise to the surface at once—treatment choices, financial worries, finding the words to tell family and friends.

At this point, it’s important to

to build the confidence you need to move ahead.

Starting a
First Treatment

A green arrow pointing to the left
A green arrow pointing to the left

Starting a First Treatment3

Your

is an important one. The treatment selected should be one you and your doctor feel is the best based on your overall health and the treatment goals you created together.

Take the time you need to focus on yourself and your treatment regimen. Don’t hesitate to contact your doctor with questions and reach out for support from family, friends, and the CLL community.

Watching and Waiting

An icon depicting a hand holding a green clock face
An icon depicting a hand holding a green clock face

Watching and Waiting5

Like most people with CLL, you may go through a “watch and wait” period before treatment starts. During this time, your doctor will keep track of how your CLL progresses. Your

and blood test results will help signal to your doctor when treatment is needed.

It can be difficult to hold off from taking action immediately. This might result in increased anxiety or symptoms of depression. Consider using all types of support during this time, including family, friends, and professionals.

This can be a great time to

learn about CLL treatment options, develop healthy habits, and focus on reducing stress.

Dealing With CLL That
Has Been Treated Before

A green arrow pointing counterclockwise
A green arrow pointing counterclockwise

Dealing With CLL That Has Been Treated Before3,6

Some people have no signs and symptoms of CLL after treatment, which is called remission. Others achieve remission, but after 6 months or more, their CLL comes back, which is called relapsed CLL. Others do not achieve remission by the end of treatment or their CLL comes back within 6 months of treatment. They have what is called refractory CLL.

When treating people with CLL, doctors may use

testing to help determine if individuals may be at a higher risk of relapse. If your CLL has returned, it’s time to regroup with your healthcare team and explore second-line

that may be right for you.

Staying on Track With Your CLL

An orange circle with a stethoscope in the middle

Having a doctor who specializes in CLL and understands your unique condition is essential3,6

An orange circle with a magnifying glass examining a blood droplet

Repeating blood tests and genetic testing helps your doctor chart the progression of your CLL3,7

An orange circle with a prescription icon in the middle

Discussing your

with your doctor, including the benefits and risks of each, is critical6

 

Building Your CLL Care Team

Your CLL care team is everyone you work with to help manage your disease.

Everyone's care team may look a bit different.

Here are some of the people who may be a part of your CLL care team7,8:

  • Your primary doctor
  • A local CLL expert, such as a hematologist-oncologist
  • A CLL expert outside of your area who you consult through telehealth visits for a second opinion or additional guidance
  • Other specialists who your doctor advises you to see
  • An appointment partner who listens, takes notes, and is there by your side
  • Your inner circle of family members and friends who you rely on for help or emotional support
  • A financial advocate—professional or family member—who can help you navigate billing, insurance companies, and pharmacy expenses
  • CLL

and community members who have firsthand experience living with CLL

A couple smiling while looking at a computer screen

Define your goals
before choosing
a treatment

Explore treatment approaches for CLL